Cassie, age 12, has a rare brain condition; PCH type 2 which controls all the motor in the brain respiratory system. In most cases, the disease is fatal early in life.
Most functions we take for granted; Cassie is unable to do (sitting, walking, talking). It is through her parents incessant tenacity and unconditional love that has enabled her to be one of the oldest living children in the UK with this condition.
Cassie receives treatment at the Adeli Center in Slovakia. This helps keep her muscles supple; develops her mobility skills and supports her with her cognitive abilities and confidence.
No child has ever sat, walked or spoken with this condition. However, on her most recent trip, Cassie was able to walk two steps and sit up unaided for the first time. Proving just how valuable this treatment is.
To remain effective, Cassie needs to have this treatment regularly as her muscles grow and become stronger.
This treatment is life changing for Cassie but is not funded by the NHS, each trip costs between £3000-£6000.
Cassie is a beautiful, happy, brave, amazing little girl with truly inspirational parents.
I am raising funds to pay for Cassie to get another trip to this amazing centre and to build her confidence and hopefully improve her quality of life.
Please every penny counts, I ask you to give up one thing ad donate that money instead:
Have one less Costa, one less chocolate bar, one less dress/pair of shoes, one less meal out, one less footy match, or better still one less holiday 🙂
Your small change can help make a big difference – every penny really does count.
‘We can do no great things, only small things with great love.’ Mother Teresa
Thank you in advance and sending you love for taking the time to read this (whether you can donate or not, please share to spread awareness).